Swaroop

Finding a cure for MND – Letter to our honourable PM Shri Narendra Modiji

Dear Honourable PM Shri Narendra Modiji I appeal to you as an Indian affected by a dreaded disease, namely Motor Neurone Disease (MND). Motor neurone disease (MND) is the name given to a group of diseases in which the nerve cells – neurones – controlling the muscles that enable us to move, speak, breathe andContinue reading “Finding a cure for MND – Letter to our honourable PM Shri Narendra Modiji”

Life – Purpose

Human beings are the most intelligent life forms in the known universe. We are the most accomplished and blessed with strength, form, intelligence, cleverness, cunningness, common sense, self awareness et al. Why is it so? In the millions of years of evolution why did this (known) universe hit upon such a successful species ever toContinue reading “Life – Purpose”

Homeopathy

I’m trying homeopathy medicine for the past 1 week. It involves chewing a tablet thrice a day. Its sweet to taste, so chewing is not a problem and the doctor has advised to take it after 30 mins of taking the regular allopathic medicine(rilutor, vitamins etc) The breathing and speech have improved. While I’m continuingContinue reading “Homeopathy”

Heredity

My mom was a doctor working for the Govt of Karnataka(state in India). She was diagonized with Parkinson at the age of 45 years. Although doctors did not give her too much time with the disease, she lived for 22 years and died at the age of 67 She was on allopathic medicine Amantadine andContinue reading “Heredity”

Riluzole

I was prescribed Riluzole – Rilutor and have been on it for over 2 months now. The doc has prescribed me to take 1 in the morning and 2 in the evening. It is hard to get Rilutor at the druggist stores in Bangalore (and I presume other parts of India as well) Since IContinue reading “Riluzole”

Yoga and breathing exercises

I have been practicing yoga almost with a small break of 6 months over the last 13 years. I had to take a 6 month break in 2016 due to a shoulder dislocation surgery. I practise it thru http://www.sayyoga.in/. I personally like their approach as they ensure individual attention for all practitioners in a stateContinue reading “Yoga and breathing exercises”

Beach outing

We set out in 2 cars to the beach, which is about 30 min drive from home. I was on the wheel. Me, my wife, my cousins and 7 kids drove down at around 10AM. The shoreline(Padubidri) is clean and well maintained. We had the kids and us go out about 30 feet into theContinue reading “Beach outing”

Feeling better

I’m feeling a lot better finally. My breathing and talking is more easier. I’m able to recite the speech therapy syllables a lot more per breath than before. The oil massage of the spine area and speech therapy exercises are continuing as usual. The daily dose of medicine – riluzole, vitamins – is continuing asContinue reading “Feeling better”

Travel – Drive

The weekend was hectic. I drove my family for over 1000 kms over 2 days. We took frequent breaks in between and were still able to meet the google map time, that was displayed, when we initially started out. It was tiring. On Monday, I drove 12 hours with a few breaks in between. ByContinue reading “Travel – Drive”

Sleep and Twitching

I do have a sound snoring sleep! My snoring has increased in volume over the past few days. Sleeping on the side, usually reduces the decibels, vis-a-vis sleeping on the back! Some nights I do get random dreams and wake up. Sweating is profuse as well at around 3AM most nights. Not sure if itsContinue reading “Sleep and Twitching”