I’m feeling a lot better finally. My breathing and talking is more easier. I’m able to recite the speech therapy syllables a lot more per breath than before. The oil massage of the spine area and speech therapy exercises are continuing as usual. The daily dose of medicine – riluzole, vitamins – is continuing as usual.
Could the non polluted environs and abundance of oxygen be the reason for me feeling better? The environment around the house is filled with coconut, areca, banana and cashew trees, with a large sprinkling of shrubs, flowering plants and grass. Peacocks are in abundance in the area. Photos below are from here.
We did go temple hopping and my in laws are confident that i would be rid of this disease soon. We went to the Shiva and Durga Parameswari temples today, close by.
Yesterday night we had a birthday bash at home for my brother-in-law’s son’s 5th birthday. There was a small gathering of neighbours and cousins. the kids had a blast. I too partook in their games and smashing the balloons, in the end!
Rarely, people do notice the slowness of my speech, however, it’s no hindrance to understanding what i’m conveying. I’m using a lot more short sentences. The kids play with me with gay abandon and i’m able to almost match their physical boundaries!
All in all i’m having a good time with only the daily routine of medicines to remind me of MND. I wish this phase continues for ever!
Swaroop Shastri - Living with ALS / MND 