Swaroop

Acupuncture

My beautiful dutiful wife has been looking up alternative therapies. Acupuncture somehow stuck. I’m going to the clinic everyday for 30mins to get needles into my body, for the past 2 weeks. It’s too early to pass any judgement, the pricks hurt only slightly (pin pricks!) at the time of needle insertion. The doctor, preparesContinue reading “Acupuncture”

Stem Cell therapy

I have googled and consulted various experts on Stem Cell Therapy. I also have consulted the clinics which do stem cell therapy. While the clinics have ranged from being very bullish to some being slightly bullish in terms of the outcomes for the treatment, my neurologists have cautioned me against it. One of my neurologistContinue reading “Stem Cell therapy”

Speech Therapy

I was advised speech therapy. The therapist suggested a range of tongue movements, sounds, words with multiple syllables (ex: deteriorate), reading a page aloud. She also suggested recording a min or two of a book and sending the recording to her. I have sent one recording out now. She has also suggested some exercises thatContinue reading “Speech Therapy”

MND Diagnosis

Strength does not come from physical capacity. It comes from indomitable will — Mahatma Gandhi. To start with, I’m a 43 year old male and was diagnosed with Motor Neurone Disease(MND) in late October 2019. Below is the run-up to the diagnosis and treatment. I first noticed that the tongue was not rolling enough forContinue reading “MND Diagnosis”

Why am I writing this Blog

Hi, My name is Swaroop Shastri. I’m from Bangalore, India. Needless to say I’m an IT professional working in a prestigious company in Bangalore! I’ve been recently diagnosed with MND Bulbar and I hope to write my journal regularly for all to see. Hopefully, my daily activities and symptoms will give an insight into theContinue reading “Why am I writing this Blog”