It’s been 5 years dealing with this beastly disease, ALS. I’m almost immobile with random twitching happening all over my body. I can move my neck to a certain extent and my eyes and eyelids. My speech sounds as a bunch of grunts and is extremely difficult to understand even to my wife except forContinue reading “5 Years Living with ALS: A Personal Journey”
Tag Archives: als
Four Years on …
It’s already 4 years since I was diagnosed with ALS/MND. I’ve lost a lot of bodily functions – walk , stand, sit long hours, speech, Lifting my limbs, etc except the will to live and be there for my loved ones. This apart, I believe, regular physiotherapy by my good physiotherapist and supplemental nutrition haveContinue reading “Four Years on …”
Speaking with my eyes
My physical body is beginning to rapidly fail. I am barely mobile, and my speech has become slurred to a point where my interactions with people I have never met before are hardly intelligible. My mind continues to be as sharp as ever with all my senses intact. My hands tremble often and fingers twitchContinue reading “Speaking with my eyes”
Swaroop Shastri - Living with ALS / MND 